KUCI/Privacy Piracy Fund Drive Donors

We want to give a special thank you to those who donated to the KUCI Fund Drive in special support of Privacy Piracy

Meet your hosts

Mari Frank

Mari Frank, attorney and privacy consultant, is the creator of The Identity Theft Survival Kit, the audiocassette series Identity Theft Prevention and Survival, co-author of Privacy Piracy (with Beth Givens), and the author of two new books published by Porpoise Press (January 2005): From Victim to Victor: A Step by Step Guide for Ending the Nightmare of Identity Theft (2nd Edition, with CD) and Safeguard Your Identity: Protect Yourself With a Personal Privacy Audit. Mari is also the co-host with Lloyd Boshaw of Privacy Piracy a one hour public affairs radio show at KUCI 88.9 FM and www.kuci.org (U. of Ca., Irvine) dealing with all issues of privacy in the information age.

Ms. Frank has testified many times on privacy and identity theft issues in the California legislature and in the US Congress. In May 1999, she was summoned to the White House to a press conference to speak on Consumer Privacy, and the speech was broadcast on C-SPAN. In December 2004, and March 2005, Mari's ninety-minute PBS Television special, "Identity Theft: Protecting Yourself in the Information Age," aired nationwide and aired again in June 2005. Both of her new books were featured as gifts for viewers who pledged support for local PBS stations.

Mari consults with corporations and government agencies and provides professional speaking programs. She serves on the identity theft task force of the LA County District Attorney, and California's DMV Task Force on privacy. She's an Orange County Sheriff Reserve on the High Tech Crime Unit, an Advisory Board Member of the Identity Theft Resource Center, the Privacy Rights Clearinghouse, and she's a member of the Advisory Board of the State of California's Office of Privacy Protection. Mari is a certified trainer for the State Bar of California, a law professor, and currently teaches Conflict Management at the University of California, Irvine.

Mari has appeared on dozens of national TV programs including Dateline, 48 Hours, the O'Reilly Factor, Investigative Reports, NBC and ABC Nightly News, CNN and has been interviewed on more than 250 radio shows. She has been featured in major newspapers and magazines, and her articles have been published in legal journals and magazines. Please find out more at www.identitytheft.org.

Lloyd Boshaw

Lloyd D. Boshaw, Jr. is our radio engineer and sometimes co-host (when he isn't too busy running the board, he asks questions too!) Lloyd has been a General Contractor and Builder for almost 30 years. He also is very adept at fixing almost anything and quick to learn the radio engineering skills. Lloyd is also a qualified and experienced mediator and arbitrator of construction disputes, and he has helped resolved many complex cases to the parties' satisfaction. Lloyd and Mari have been friends since they met in Hawaii in1989 and after many years married in 2001. As a favor to Mari, and as a result of his strong belief that privacy is diminishing in our society, Lloyd agreed to learn the radio skills necessary to team with Mari for this show.

Upcoming Guests

June 3, Lisa Sotto, Privacy and Data Security Attorney.

Named among The National Law Journal's "100 Most Influential Lawyers" in 2013, Lisa J. Sotto is the managing partner of the firm's New York office, and heads the firm's top-ranked Privacy and Data Security practice. She was voted the world's leading privacy advisor in Computerworld's three most recent annual surveys and is ranked in "Band 1" by Chambers USA and Chambers Global for Privacy & Data Security. Ms. Sotto also is recognized as a "leading lawyer" in the 2012 edition of The Legal 500 United States. She was named one of Ethisphere Magazine's 2012 "Attorneys Who Matter," listing attorneys who "have risen to the top." She serves as Chairperson of the Department of Homeland Security's Data Privacy and Integrity Advisory Committee.

Ms. Sotto has extensive experience counseling clients on privacy, cybersecurity and records management issues. She advises on all U.S. federal and state privacy and data security laws, including security breach notification requirements. She also advises on global data protection laws (including those in the EU and Latin America), particularly with respect to cross-border transfers of personal data.

Ms. Sotto is a member of the Board of Directors of the International Association of Privacy Professionals, co-chair of the International Privacy Law Committee of the New York State Bar Association, chair of the New York Privacy Officers' Forum and a member of SAI Global's Law and Ethics Advisory Board. She speaks frequently at conferences and seminars, testifies regularly before the U.S. Congress and other legislative and regulatory agencies, is the author of numerous treatises and articles, is sought after by media outlets and industry publications for her professional insights, and appears regularly on national television and radio news programs. She is the editor and lead author of the legal treatise entitled Privacy and Data Security Law Deskbook, published by Aspen Publishers, Wolters Kluwer Law & Business. Ms. Sotto received her J.D. from the University of Pennsylvania Law School, where she was an editor of the Law Review. She received her B.A. from Cornell University, with Distinction in All Subjects. She is admitted to practice in New York and the District of Columbia.

June 10, Phil Lee, Partner in the Privacy and Information Law Group at Field Fisher Waterhouse LLP.

Phil Lee is a Partner in the Privacy and Information Law Group at Field Fisher Waterhouse LLP, and runs the Palo Alto office of Field Fisher Waterhouse (California) LLP. Phil holds Certified Information Privacy Professional (Europe) (CIPP/E) and Certified Information Privacy Manager (CIPM) status.

Phil has particular specialisms in behavioural profiling and cookie regulation, e-marketing, and international data transfer strategies (including binding corporate rules). He has worked on numerous multi-jurisdictional data privacy projects across more than 80 countries. In addition to privacy and information law, Phil regularly advises on a wide variety of technology, social media, and e-commerce projects.

Phil holds an MA in Computer Science from Cambridge University and a postgraduate diploma in Intellectual Property from Bristol University. He is a frequent contributor to FFW's Privacy and Information Law blog (http://privacylawblog.ffw.com) and is also a contributing author to the IAPP's "European Privacy: Law and Practice for Data Protection Professionals" and Wolter Kluwers' "Global Privacy & Security Laws". Phil is a former committee member of the Society for Computer and Law's Privacy & Data Protection Group.

Phil trained and qualified at Denton Wilde Sapte and, prior to joining Field Fisher Waterhouse, worked within the digital media team at Osborne Clarke.

June 17, Jeremy Gruber, President of the Council for Responsible Genetics (CRG).

Jeremy Gruber is the President of the Council for Responsible Genetics (CRG). Since 1983, CRG has represented the public interest and fostered public debate regarding the social, ethical and environmental implications of emerging genetic technologies. CRG is the only biotech public interest organization that is explicitly dedicated to examining the best science, interpreting the results, assessing the implications, communicating them to a general audience and facilitating meaningful, measurable change. CRG also publishes a bimonthly magazine, GeneWatch, that explores emerging issues in biotechnology

Mr. Gruber is an expert on issues of genetic privacy and discrimination. He has worked for over fifteen years on genetic non-discrimination legislation at the state and Federal level and played a major role in the passage of the Federal Genetic Information Non-Discrimination Act (GINA) by Congress in 2008 as well as California's new CalGINA law in 2011. He is a founder and executive committee member of the Coalition for Genetic Fairness, a group of 500 organizations that advocates for genetic non-discrimination protections on Capitol Hill.

Mr. Gruber is a prolific writer on privacy issues ranging from direct-to-consumer genetics to forensic DNA databases and is often consulted by and called to testify before Congress, Federal agencies and state legislatures. He is regularly featured in print, radio and television.

http://www.councilforresponsiblegenetics.org/

Landline: 646-449-0731

Cell Phone: 609-610-1602

Previous Guests

Visit our Archives for previous guest interviews

May 27, Wendy Patrick, a career trial attorney and an expert in criminal law.

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Wendy L. Patrick is a career trial attorney and an expert in criminal law as well as legal and business ethics. Dr. Patrick teaches upper division business ethics at San Diego State University at both the graduate and undergraduate level. She had her own ethics column in the San Diego Daily Transcript for over a decade and teaches ethics nationally on a regular basis. She has been quoted by a wide variety of news agencies ranging from CSNBC to USA Today, and has appeared on a variety of media programs, both locally and nationwide, given legal analysis, talking about issues of business ethics, and providing commentary on a wide variety of topics.

Bringing a well-rounded perspective to her commentary, Dr. Patrick is also co-author of the revised version of the New York Times Bestseller Reading People (Random House 2008). She is routinely called upon to discuss how we can both interpret and predict behavior of others if we know what to look for.

May 20, Janine Darling, Professional Privacy Advocate, Data Security Expert and the Founder and CEO of StashDaddy.

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Janine Darling is a Professional Privacy Advocate, Data Security Expert and the Founder and CEO of StashDaddy (www.stashdaddy.com), the completely private and invisible personal information storage & protection site for consumers only. StashDaddy is a keeper not a social butterfly.

StashDaddy is the place to store your last will and testament, medical records, stock certificates, passport, legal documents…anything that you want to keep secure and completely private.

You can learn more about Janine, how to protect your privacy, & Stashdaddy, here:

http://www.youtube.com/user/jdarl1

May 13, Larry Ponemon, Chairman and Founder of the Ponemon Institute.

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Dr. Larry Ponemon is the Chairman and Founder of the Ponemon Institute, a research "think tank" dedicated to advancing privacy and data protection practices. Dr. Ponemon is considered a pioneer in privacy auditing and the Responsible Information Management or RIM framework.

Ponemon Institute conducts independent research, educates leaders from the private and public sectors and verifies the privacy and data protection practices of organizations in a various industries. In addition to Institute activities, Dr. Ponemon is an adjunct professor for ethics and privacy at Carnegie Mellon University's CIO Institute. He is a Fellow of the Center for Government Innovation of the Unisys Corporation.

Dr. Ponemon consults with leading multinational organizations on global privacy management programs. He has extensive knowledge of regulatory frameworks for managing privacy and data security including financial services, health care, pharmaceutical, telecom and Internet. Dr. Ponemon was appointed to the Advisory Committee for Online Access & Security for the United States Federal Trade Commission. He was appointed by the White House to the Data Privacy and Integrity Advisory Committee for the Department of Homeland Security. Dr. Ponemon was also an appointed to two California State task forces on privacy and data security laws.

Dr. Ponemon is a member of the National Board of Advisors of the Eller College of Business and Public Administration, University of Arizona. He serves as Chairman of the Government Policy Advisory Committee and Co-Chair of the Internet Task Force for the Council of American Survey and Research Organizations (CASRO).

Dr. Ponemon was a senior partner of PricewaterhouseCoopers, where he founded the firm's global compliance risk management group. Prior to joining Price Waterhouse as a partner, Dr. Ponemon served as the National Director of Business Ethics Services for KPMG Peat Marwick, and was appointed Executive Director of the KPMG Business Ethics Institute.

Dr. Ponemon has held chaired (tenured) faculty positions and published numerous articles and learned books. He has presented hundreds of keynote speeches or learned presentations at national or international conferences on privacy, data protection, information security, corporate governance, and responsible information management. Dr. Ponemon is an active member of the International Association of Privacy Professionals, serving as founding member of the Certified Information Privacy Professional (CIPP) Advisory Board.

Dr. Ponemon is column editor for Computerworld, CSO Magazine, BNA, Dark Reading and other leading publications. He is a frequent commentator on privacy and business ethics for CNN, Fox News, MSNBC, The Wall Street Journal, New York Times, Washington Post, USA Today, Financial Times, Business 2.0, Newsweek, Business Week, U.S. News & World Report, CIO Magazine, Industry Standard, Boston Globe, InfoWorld, InformationWeek, Forbes, Fortune, CFO Magazine, Red Herring, Dow Jones News and others.

Dr. Ponemon earned his Ph.D. at Union College in Schenectady, New York. He has a Master's degree from Harvard University, Cambridge, Massachusetts, and attended the doctoral program in system sciences at Carnegie Mellon University, Pittsburgh, Pennsylvania. Dr. Ponemon earned his Bachelors with Highest Distinction from the University of Arizona, Tucson, Arizona. He is a Certified Public Accountant and a Certified Information Privacy Professional.

Dr. Ponemon is a veteran (Vietnam War era) of the United States Navy. He is married and has two sons. Dr. Ponemon is an instrument rated private pilot.

May 6, Lori Andrews, law professor and Director of the Institute for Science, Law and Technology at Illinois Institute of Technology Chicago-Kent College of Law.

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Lori Andrews is a law professor and Director of the Institute for Science, Law and Technology at Illinois Institute of Technology Chicago-Kent College of Law. She received her B.A. summa cum laude from Yale College and her J.D. from Yale Law School. She has been a visiting professor at Case Western Reserve University School of Law and at the Woodrow Wilson School of Public and International Affairs at Princeton University.

Lori is an internationally recognized expert on emerging technologies. She chaired the federal advisory committee to the Human Genome Project and has advised governments and professional groups ranging from the G8 science ministers to the U.S. Centers for Disease Control. She grounds her policy analysis in detailed empirical studies, for which she has received grants from the U.S. Congress, the National Institutes of Health, the National Science Foundation, the U.S. Department of Energy, the Robert Wood Johnson Foundation, the Greenwall Foundation, and the M.D. Anderson Foundation. Her path-breaking litigation about technologies caused the National Law Journal to list her as one of the "100 Most Influential Lawyers in America."

Lori is the author of 11 non-fiction books and the author of more than 150 articles on health care policy, biotechnology, genetics and digital technologies. The American Bar Association Journal describes Lori as "a lawyer with a literary bent who has the scientific chops to rival any CSI investigator." She also has written three mystery books (Sequence, The Silent Assassin, and Immunity) with a female geneticist and a military lawyer as the main characters.

In her most recent book, I Know Who You Are and I Saw What You Did: Social Networks and the Death of Privacy, she created a Social Network Constitution and explores how what you do on the Web can be used against you-and what you can do about it. She says that unlike Vegas, what happens in Facebook doesn't stay in Facebook.

Apr 29, Tamara Hunter, leader of Davis, LLP firm's Privacy Law Compliance Group and a member of the Litigation Group.

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Tamara Hunter is the Leader of the firm's Privacy Law Compliance Group and a member of the Litigation Group. She practises in the areas of freedom of information and privacy law, administrative law, professional regulation law, and commercial litigation. She acts for a variety of professional regulatory bodies on matters involving registration, professional disciplinary proceedings and related litigation.

She has conducted numerous hearings before professional disciplinary tribunals and has represented professional regulatory bodies before the Office of the Information and Privacy Commissioner, the British Columbia Human Rights Tribunal, the Supreme Court of British Columbia and the British Columbia Court of Appeal.

Tamara has represented both private sector and public sector organizations before the Office of the Information and Privacy Commissioner and in related litigation.

Born in New Westminster, B.C., Tamara obtained a Bachelor of Arts degree from Simon Fraser University in 1988. She received the Chancellor's Entrance Scholarship and majored in both economics and business administration.

Tamara then attended the University of British Columbia where she received her Law Degree in 1990.

Prior to joining Davis, Tamara was a Law Clerk to the Right Honourable Chief Justice Lamer of the Supreme Court of Canada.

Apr 22, Kenneth Cukier, Data Editor of The Economist.

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Kenneth Neil Cukier is the Data Editor of The Economist. From 2007 to 2012 he was the Japan business and finance correspondent, and before that, the paper's technology correspondent based in London, where his work focused on innovation, intellectual property and Internet governance.

Previously, he was the technology editor of The Wall Street Journal Asia in Hong Kong and a regular commentator on CNBC Asia. Earlier still, he was the European Editor of Red Herring and worked at The International Herald Tribune in Paris. From 2002 to 2004 Mr. Cukier was a research fellow at Harvard's Kennedy School of Government, working on the Internet and international relations.

His writings have also appeared in The New York Times, The Washington Post, Prospect, The Financial Times and Foreign Affairs, among others. He has been a frequent commentator on business and technology matters for CBS, CNN, NPR, the BBC and others. He has given the keynote address or moderated panels at the World Economic Forum, Strata, the UN Internet Governance Forum, OECD, APEC as well as at private events for companies.

Mr. Cukier serves on the board of directors of International Bridges to Justice, a Geneva-based NGO promoting legal rights in developing countries. Additionally, he served on the board of advisors to the Daniel Pearl Foundation. He is a member of the Council on Foreign Relations.

Apr 15, Viktor Mayer-Schönberger, Professor of Internet Governance and Regulation at Oxford University.

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Viktor Mayer-Schönberger is Professor of Internet Governance and Regulation at the Oxford Internet Institute / Oxford University. He is also a faculty affiliate of the Belfer Center of Science and International Affairs at Harvard University. In addition to "Big Data", Mayer-Schönberger has published eight books (including the awards-winning "Delete: The Virtue of Forgetting in the Digital Age" with Princeton University Press) and is the author of over a hundred articles and book chapters on the information economy.

After successes in the International Physics Olympics and the Austrian Young Programmers Contest, Mayer-Schönberger studied in Salzburg, Harvard and at the London School of Economics. In 1986 he founded Ikarus Software, a company focusing on data security and developed the Virus Utilities, which became the best-selling Austrian software product. He was voted Top-5 Software Entrepreneur in Austria in 1991 and Person of the Year for the State of Salzburg in 2000. He has chaired the Rueschlikon Conference on Information Policy in the New Economy, bringing together leading strategists and decision-makers of the new economy.

He is a frequent public speaker, and sought expert for print and broadcast media worldwide. He and his work have been featured in (among others) New York Times, Wall Street Journal, Financial Times, The Economist, Nature, Science, NPR, BBC, The Guardian, Le Monde, El Pais, Die Zeit, Der Spiegel, WIRED, Ars Technica, and Daily Kos. He is also on the boards of foundations, think tanks and organizations focused on studying the information economy, and advises governments, businesses and NGOs on new economy and information society issues.

Apr 8, Ann Cavoukian, Information and Privacy Commissioner.

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Dr. Ann Cavoukian is recognized as one of the leading privacy experts in the world. Noted for her seminal work on Privacy Enhancing Technologies (PETs) in 1995, her concept of Privacy by Design seeks to proactively embed privacy into the design specifications of information technology and accountable business practices, thereby achieving the strongest protection possible. In October, 2010, regulators from around the world gathered at the annual assembly of International Data Protection and Privacy Commissioners in Jerusalem, Israel, and unanimously passed a landmark Resolution recognizing Privacy by Design as an essential component of fundamental privacy protection. This was followed by the U.S. Federal Trade Commission's inclusion of Privacy by Design as one of its three recommended practices for protecting online privacy - a major validation of its significance.

An avowed believer in the role that technology can play in the protection of privacy, Dr. Cavoukian's leadership has seen her office develop a number of tools and procedures to ensure that privacy is strongly protected, not only in Canada, but around the world. She has been involved in numerous international committees focused on privacy, security, technology and business, and endeavours to focus on strengthening consumer confidence and trust in emerging technology applications.

Dr. Cavoukian serves as the Chair of the Identity, Privacy and Security Institute at the University of Toronto, Canada. She is also a member of several Boards including, the European Biometrics Forum, Future of Privacy Forum, RIM Council, and has been conferred a Distinguished Fellow of the Ponemon Institute. Dr. Cavoukian was honoured with the prestigious Kristian Beckman Award in 2011 for her pioneering work on Privacy by Design and privacy protection in modern international environments. In the same year, Dr. Cavoukian was also named by Intelligent Utility Magazine as one of the Top 11 Movers and Shakers for the Global Smart Grid industry, received the SC Canada Privacy Professional of the Year Award and was honoured by the University of Alberta Information Access and Protection of Privacy Program for her positive contribution to the field of privacy. Most recently in November 2011, Dr. Cavoukian was ranked by Women of Influence Inc. as one of the top 25 Women of Influence recognizing her contribution to the Canadian and global economy. This award follows her recognition in 2007 by the Women's Executive Network as one of the Top 100 Most Powerful Women in Canada.

Apr 1, KUCI 24 Hours of Jazz

Listen again next week to Privacy Piracy for more interesting interviews.

Mar 25, Jayne Hitchcock, author and cyber bullying and cyber crime expert.

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Jayne A. Hitchcock is an author and cyber bullying and cyber crime expert. She volunteers with the U.S. DOJ Office for Victims of Crime, the National Center for Victims of Crime, and law enforcement agencies worldwide. She has worked tirelessly with legislators in the drafting and passing of many of this country's Internet laws.

As president of WHOA (Working to Halt Online Abuse) at haltabuse.org and WHOA-KTD (Kids/Teens Division) at haltabusektd.org, Jayne continues a mission to educate adults and children in online safety.

Jayne conducts law enforcement training for local, county, state, military and federal agencies. Her speaking schedule on cyber crime and cyber bullying includes elementary/middle/high schools, universities and colleges. She also lectures at libraries, conferences, and corporations. She has been featured on Swift Justice, America's Most Wanted, 48 Hours, Good Morning America, Cosmopolitan and TIME magazines, and local, national and international newscasts, and was selected by Lifetime TV as their "Champion For Change."

Jayne's ninth book, True Crime Online: Shocking Stories of Scamming, Stalking, Murder and Mayhem is now available. She is also on the editorial board of the International Journal of Cyber Crimes and Criminal Justice. She is a member of Operations Security Professionals Society, Sisters In Crime (national and New England), Maine Writers & Publishers Alliance, National Rifle Association (Life Member), The American Legion, and 3rd Marine Division Association (Life Member).

Mar 18, Don Ulsch, C.E.O. and Chief Risk Analyst of Boston-based ZeroPoint Risk Research LLC

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MacDonnell Ulsch is C.E.O. and Chief Risk Analyst of Boston-based ZeroPoint Risk Research LLC. The firm conducts operational risk research, advice, and counsel to a variety of clients. His concentration is in corporate breach investigations involving intellectual property, trade secrets, and regulated information. He is a subject matter expert on cyber crime, cyber threats, cyber disinformation, cyber terrorism, and economic espionage.

He is the author of the book, "THREAT! Managing Risk in a Hostile World," published by The Institute of Internal Auditors Research Foundation. Intellectual property from the book "THREAT!" has been developed into research methodologies known as the Enterprise Threat Index-Predictive Risk Impact Scenario Modeling or ETX-PRISM. He is currently working on another book, one about the major mistakes that companies have made in managing enterprise risk.

Don has spoken extensively at conferences throughout the U.S. and Europe. In August 2011, he delivered the keynote address at the U.S. Federal Reserve IT Conference on the subject of cloud computing and regulatory risk. He was a national security source for "Da Vinci Code" author Dan Brown.

While at the National Security Institute, a defense and security think tank advising defense contractors and the intelligence community, he briefed the counter-intelligence office of a U.S. President on critical infrastructure and intelligence agency sharing. Don remains an advisor to the National Security Institute and frequently briefs the U.S. Department of Homeland Security.

He also served as Trusted Advisor to the bipartisan United States Secrecy Commission under Sen. Daniel Patrick Moynihan and Sen. Jesse Helms, created under Title IX of the Foreign Relations Authorization Act. The Commission analyzed the impact of technology on the reclassification and declassification of U.S. government secrets. While Director of Global Risk at PricewaterhouseCoopers, he worked with United States Sen. Sam Nunn on information security policy and developed an operational risk briefing program with the Senator for the chief executive of a large global financial institution.

He has briefed the U.S. Government Accountability Office and Department of Justice after breaking one of the largest industrial espionage cases in U.S. history, involving two major technology companies. The case was referred to the U.S. Department of Justice for prosecution, leading to the breakup of telecommunications giant NYNEX.

Don has been named a Distinguished Fellow of Ponemon Institute, a leading privacy research organization. He has been quoted in the Wall Street Journal, the Boston Globe, Kiplinger's, BusinessWeek, Forbes, CNN.com, and has appeared of ABC News for both radio and television. He has contributed articles to the Toronto Star, the Boston Globe, the Miami Herald, United Press International, Information Security Magazine, U.S. Defense Tech, and many other publications.

Don.Ulsch@ZeroPointRisk.com

Mar 11, Deborah Peel, the nation's leading advocate for patients' rights to control access to sensitive personal health information in electronic systems.

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Deborah C. Peel, MD is the nation's leading advocate for patients' rights to control access to sensitive personal health information in electronic systems. The lack of health privacy causes millions of people to avoid early diagnosis and treatment for cancer, depression, and STDs every year. She became an expert and privacy warrior to stop patients from being harmed. She is a practicing physician and Freudian psychoanalyst.

Her passion is educating the public about privacy-enhancing technologies, architectures, policies, and laws, so they can advocate to restore their civil and human rights to health privacy.

In 2002, amendments to HIPAA eliminated patients' longstanding rights to control personal health information. The right of consent was replaced with "regulatory permission for covered entities to use and disclose health records for treatment, payment, and healthcare operations." The Amended HIPAA Privacy Rule put institutions in control of the use, disclosure, and sale of patients' health information, from DNA to diagnoses to prescription records. Patient control over health data was eliminated.

In 2004, she formed Patient Privacy Rights (PPR), a 501c3 non-profit organization to educate Americans about the importance of health privacy. PPR is the world's leading consumer health privacy advocacy organization, with over 12,000 members in all 50 states.

In 2006, Dr. Peel founded the bipartisan Coalition for Patient Privacy. The coalition membership includes over 50+ national organizations, representing 10.3 million people who want to control the use of personal health information. In 2007, Microsoft Corporation joined the Coalition.

In 2009, the Coalition for Patient Privacy worked to ensure historic new privacy and security protections were added to HITECH, the technology portion of the stimulus bill. Protections included: a ban on sales of protected health information (PHI) without consent, audit trails for disclosures of PHI from EHRs, the ability to segment sensitive PHI, meaningful breach notice, the right to block disclosure of PHI for healthcare operations if treatment is paid for out-of-pocket, and requiring encryption. See: http://patientprivacyrights.org/media/CoalitionPatPriv_Final01.14.09.pdf

Since 2007, Dr. Peel has been named one of ModernHealthcare magazine's "100 Most Influential in Healthcare" four times. In 2013, she was named one of the "Top Ten Influencers in Health InfoSec" by HealthcareInfoSecurity.

Dr. Peel is the catalyst and creator of the annual International Summits on the Future of Health Privacy. First started in 2011, the summits are unique in the world: urgent threats to health privacy and realistic solutions are thoughtfully debated by national and international experts from advocacy, academia, government, and industry. To register for the next summit and watch videos from earlier summits visit: www.healthprivacysummit.org.

Mar 4, Justine Phillips, active member of the Employer Services and Cybersecurity teams at McKenna Long & Aldridge LLP

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Justine Phillips is an active member of the Employer Services and Cybersecurity teams at McKenna Long & Aldridge LLP. She focuses her practice on employment litigation and counseling, commercial litigation, data breach and cybersecurity related issues.

Ms. Phillips' experience includes advising clients on issues relating to employee privacy issues, data retention and security, social media issues for businesses, employment agreements, employee handbooks, leave policies, interactive process and reasonable accommodation, wage and hour matters, classification issues, information management, and other privacy-related issues. She has defended companies in both state and federal court against claims of discrimination, harassment, retaliation, and wrongful dismissals. Additionally, she has experience assisting clients with crisis management and forensic investigations for data breaches, cyber-attacks, and complex e-discovery issues.

Ms. Phillips was named as one of the San Diego Daily Transcript's Young Attorneys in 2007, 2008 and 2010. In 2012, she was awarded the State Bar of California Wiley Manual award for pro bono legal services.

Feb 25, Woodrow Hartzog, Assistant Professor at the Cumberland School of Law at Samford University & Affiliate Scholar at the Center for Internet and Society at Stanford Law School

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Woodrow Hartzog is an Assistant Professor at the Cumberland School of Law at Samford University. He is also an Affiliate Scholar at the Center for Internet and Society at Stanford Law School. His research focuses on privacy, online communication, human-computer interaction, robotics, and electronic agreements. His work has been published in law reviews and peer-reviewed publications such as the California Law Review, Michigan Law Review, Georgia Law Review, American University Law Review, Temple Law Review, First Monday, Journal of Intellectual Property Law, and Communication Law and Policy. He previously worked as a trademark attorney at the United States Patent and Trademark Office and as an associate attorney at Burr & Forman LLP. He has also served as a clerk for the Electronic Privacy Information Center. He previously taught courses as an adjunct professor in the Department of Journalism and Mass Communications at Samford University and as an instructor of record in the School of Journalism and Mass Communication at the University of North Carolina. He holds a Ph.D. in mass communication from UNC, an LL.M. in intellectual property from the George Washington University Law School and a J.D. from the Cumberland School of Law at Samford University.

Feb 18, Art Maines, Author of Scammed: 3 Steps to Help Your Elder Parents and Yourself

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A graduate of Texas A & M University and the George Warren Brown School of Social Work at Washington University in St. Louis, Art has been in active clinical practice for over 13 years. He has been a guest lecturer at Washington University, and has conducted trainings for managed behavioral health care companies as well as Fortune 500 corporations. He is especially honored to have been asked to conduct several trauma debriefings with victims of the 9/11 attacks in New York.

Art has also been a speaker on elderly fraud prevention and recovery at both the state and national level. He has spoken for 3 years in a row at the Missouri National Association of Social Workers symposium, and he recently presented at the national conference for the National Association of Social Workers in Washington, DC. He has trained on topics related to elderly fraud recovery and prevention to professional groups and senior organizations, and has consulted with scam victims' families locally and nationally. He is the author of the new book Scammed: 3 Steps to Help Your Elder Parents and Yourself.

In addition, his blog and website Elderly Fraud Recovery Help has drawn both national and international readers. Drawing on his own experience helping his 83 year old stepfather recover from a series of devastating scams, and his clinical skills as a practicing therapist, gives him a unique perspective on this growing problem.

Art lives in St. Louis, Missouri with his partner, Frank, and their chocolate Labrador retriever, Bodie.

Feb 11, Trevor Hughes, president and CEO of the International Association of Privacy Professionals (IAPP)

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J. Trevor Hughes is the president and CEO of the International Association of Privacy Professionals (IAPP). In this role, Hughes leads the world's largest association of privacy professionals.

A native of Canada, Hughes is an experienced attorney in privacy, technology and marketing law. He has provided testimony before the U.S. Congress Commerce Committee, the Senate Commerce Committee, the Federal Trade Commission, the Home Affairs Committee of the British Parliament and the EU Parliament on issues of privacy, surveillance, spam and privacy-sensitive technologies.

Hughes previously served as the executive director of the Network Advertising Initiative, a leading online privacy trade association, and the Email Sender and Provider Coalition, a trade association working on e-mail policy and practices. He is also an adjunct professor of law at the University of Maine School of Law.

Feb 4, Rebecca Herold, Owner & CEO of The Privacy Professor

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Rebecca Herold, CIPP/IT, CIPP/US, CISSP, CISM, CISA, FLMI
Owner & CEO, The Privacy Professor (http://www.privacyguidance.com)
Partner, Compliance Helper (http://www.compliancehelper.com)
Adjunct Professor for the Norwich University Master of Science in Information Assurance (MSIA) program (http://www3.norwich.edu/msia)
Twitter ID: PrivacyProf (http://twitter.com/PrivacyProf)

Rebecca widely recognized and respected and has been providing information privacy, security and compliance services, tools and products to organizations in a wide range of industries for over two decades. Some of her awards and recognitions include the following:

• Rebecca was named a Privacy by Design (PbD) Ambassador by Ontario Privacy Commissioner Dr. Anne Cavoukian
• Rebecca was named one of the most influential people and groups in online privacy by Techopedia.com
• Rebecca's blog was named in the "Top 50 HIPAA Blogs" by Medicine E-Learning
• Rebecca has been named one of the "Best Privacy Advisers In The World" multiple times in recent years by Computerworld magazine, most recently ranking #3 in the world in the last rankings provided
• Rebecca is a member of several Advisory Boards, including the prestigious Editorial Advisory Board for Elsevier's "Computers & Security" journal and the IAPP's Certification Advisory Board
• Rebecca's blog was named one of the "Top 50 Internet Security Blogs" by the Daily Netizen.
• Rebecca was named one of the "Top 59 Influencers in IT Security" by IT Security magazine
• The information security program Rebecca created for Principal Financial Group, where she worked for 12 years, received the CSI Information Security Program of the Year Award

Jan 28, Anne Wallace, Senior Director for Consumer Financial Services, the Financial Services Roundtable, and President of the Identity Theft Assistance Corporation

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Anne Wallace is Senior Director for Consumer Financial Services, the Financial Services Roundtable, and President of the Identity Theft Assistance Corporation, a nonprofit corporation that operates ITAC, the Identity Theft Assistance Center.

In her role as Senior Director, Ms. Wallace is the Roundtable's liaison with the Consumer Financial Protection Board (CFPB), established by Congress in 2010 under the Dodd-Frank Wall Street Reform and Consumer Protection Act.

As ITAC President, Ms. Wallace oversees operations of ITAC Victim Assistance®, which is free to the consumer and supported by member companies, has helped tens of thousands of consumers recover from identity theft. As the financial services industry center of expertise, ITAC and its member companies fight identity theft through identity protection and victim assistance services, law enforcement partnerships, consumer education and research.

A nationally recognized expert on privacy, financial services and payments law, Ms. Wallace serves as a resource for the news media, Congress and academia on these issues. She advocates for identity theft victims in the national dialogue about finding solutions to one of society's most intransigent crimes. She helped develop ITAC Sentinel®, an identity management service that makes ITAC Victim Assistance available to all consumers.

She began her legal career with the Board of Governors of the Federal Reserve Board where she served as Assistant Director of the Division of Consumer and Community Affairs and implemented key consumer credit laws including the Equal Credit Opportunity Act.

Previously, Ms. Wallace pioneered the financial services privacy consulting practice at KPMG Consulting. Ms. Wallace also served as legal advisor to the U S. Treasury Department's initiative to convert the federal government's paper-based collections and disbursements to electronic funds transfers.

A graduate of Boston University Law School and Fordham University, Ms. Wallace also is a member of Banking and Consumer Financial Services Committees of the American Bar Association's Business Law Section and a member of the American College of Consumer Financial Services Lawyers.

Ms. Wallace serves on the board of Opera Vivente in Baltimore.

Jan 21, Martine Ehrenclou, Award-winning author, patient advocate and speaker.

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Martine Ehrenclou, M.A., is an award-winning author, patient advocate and speaker. Her first book, Critical Conditions: The Essential Hospital Guide To Get Your Loved One Out Alive received fifteen book awards. Her newest health book, The Take-Charge Patient: How You Can Get The Best Medical Care, winner of two book awards, empowers readers to become proactive and effective participants in their own health care. Martine's mission is to bring to light the importance of being an advocate for oneself and others. Through her books, media interviews, articles, blog, and lectures, Martine Ehrenclou reveals insider information on how to interact effectively with medical professionals and navigate the health care system.

Six months into her research for The Take-Charge Patient, Martine developed debilitating, chronic pain that lasted sixteen months and used every strategy in her new book. She went from an advocate for others to an advocate for herself, and became her own take-charge patient. After eleven doctors failed to diagnose her correctly, Martine's exhaustive research led her to the surgeon who diagnosed her and cured her. She has been pain free for over a year.

Martine regularly publishes articles on the topics of patient empowerment, patient advocacy, patient safety, successful communication in medical encounters, the collaborative relationship between patients and medical professionals, and other health/medical related issues. She is interviewed regularly on national TV, radio, newspapers and magazines, including NBC News, ABC News, KCAL 9 News, Woman's Day, Family Circle, Los Angeles Times Magazine and many more. Martine also lectures at universities, hospitals, and health organizations, and writes a blog.

Martine has a master's degree in psychology from Pepperdine University. Prior to becoming a health writer and patient advocate, Martine was a journalist, ghostwriter and public relations professional. She created and ran a writing program for at-risk teenagers. Her personal experience with loved ones with extended hospitalizations changed her career path in 2001.

Visit her at her websites, www.TheTakeChargePatient.com and www.CriticalConditions.com

Jan 14, Robert Ellis Smith, Journalist & Publisher of Privacy Journal.

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Robert Ellis Smith is a journalist who uses his training as an attorney to report on the individual's right to privacy. Since 1974, he has published Privacy Journal, a monthly newsletter on privacy in a computer age based in Providence, R.I.

Smith is a frequent speaker, writer, and Congressional witness on privacy issues and has compiled a clearinghouse of information on the subject: computer data banks, credit and medical records, the Internet, electronic surveillance, the law of privacy, and physical and psychological privacy.

From 1970 to 1973, Smith was the assistant director of the Office for Civil Rights in the U.S. Department of Health, Education, and Welfare. Prior to that, he had nine years of experience as a news reporter and editor with the Detroit Free Press, Trenton Times, The Southern Courier, and Newsday.

He has taught at Harvard College, University of Maryland, Emerson College, and Brown University.

A 1962 graduate of Harvard College, Smith received his law degree from the Georgetown University Law Center in 1976. He served as a member of the District of Columbia Human Rights Commission until 1986. In 1997, Vice President Gore named him to the Civil Liberties Panel of the White House Commission on Aviation Safety and Security. From 1996 to 2002, he served as vice chair of the Coastal Resources Management Council, which protects the 400 miles of Rhode Island coastline.

www.privacyjournal.net

Jan 7, Jeremy Gruber, President of the Council for Responsible Genetics.

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Jeremy Gruber is the President of the Council for Responsible Genetics (CRG). Since 1983, CRG has represented the public interest and fostered public debate regarding the social, ethical and environmental implications of emerging genetic technologies. CRG is the only biotech public interest organization that is explicitly dedicated to examining the best science, interpreting the results, assessing the implications, communicating them to a general audience and facilitating meaningful, measurable change. CRG also publishes a bimonthly magazine, GeneWatch, that explores emerging issues in biotechnology.

Mr. Gruber is an expert on issues of genetic privacy and discrimination. He has worked for over fifteen years on genetic non-discrimination legislation at the state and Federal level and played a major role in the passage of the Federal Genetic Information Non-Discrimination Act (GINA) by Congress in 2008 as well as California's new CalGINA law in 2011. He is a founder and executive committee member of the Coalition for Genetic Fairness, a group of 500 organizations that advocates for genetic non-discrimination protections on Capitol Hill.

Mr. Gruber is a prolific writer on privacy issues ranging from direct-to-consumer genetics to forensic DNA databases and is often consulted by and called to testify before Congress, Federal agencies and state legislatures. He is regularly featured in print, radio and television.

http://www.councilforresponsiblegenetics.org/